Sunday, January 3, 2016

God is answering my prayers with a.... DOG?!?!

For the duration of my entire life I have wanted more than anything to be good enough. I have an idea in my head  of what is good enough and I almost never reach this idealization. Once in a while I have a glimpse that I am what I should be... I have noticed in my adult life that this always occurs when I give up my ideals and focus on God and just doing the next right things one step at a time. I have learned with time and experience that many women feel this way. We tend to compare our worst inside feelings to the best of what we see on the outside of other people. I have learned through trial and error what it means to really live the spirit filled life and to lean into the Lord. But... I'm human and I'm I have some areas that really need to grow and I tend to fall away from this blessed path over time.... and time and again. Don't worry, I am repentant but I also understand that this is typical for being human and well documented through the Bible.
I have been praying for God to show me in a real and literal way what I need to do to keep growing. I know in my heart that I need to stay in the word and to keep living the truths I know in my heart but somehow in this recent spiritual winter I have been missing the real radical presence with life application that I crave with all my heart. I WANT A ROAD MAP!!!! Yes, I know that's now how it works. God is a radical presence but we don't get a road map.
As I reflect on these deep thoughts I looked back through my prayer journal and my "ah-ha" moments. I noticed a pattern and I saw that once again I have fallen away from what I need.
I have the answer I need.
How do I get back on track and really seek the Lord with a heart that is willing to follow and learn and submit?
The pattern I saw was that I have have countless moments where I realize that if God wanted me anywhere else he could have put me in those places. I have had several realizations that I just need to be present in the moment. I need to stop comparing my worst to others' best. I need to just be content and not even worry about the next right thing when this moment is not over. This seemingly small step could really go a long way toward some areas I really need to grow in; patience, peace, self-control, grace... just to name a few.
So I pray and and I seek and I wait and I keep going in circles.... until one day I realize that I have started a project that addresses all of those struggles I just described. I think God has facilitated something in my life that is so meaningful that I can't give up and forces me to live in the moment and to concentrate on what is presently going on.
As you know we have a cute Daniff (Great Dane/ Mastiff) puppy. He is a little over 3 months old and we are just a few days past our 2 month milestone into this journey. I haven't slept through the night in 2 months and 3 days. Our world revolves around him right now. We are training him as a service dog for Faith. It's a long journey and we have already had our speed bumps but we're committed and we really believe that this is the best for our child and so we won't stop and we will give everything we can to making this work.
Part of our process is puppy training. We have committed to 2+ years of regular training with high standards. As usual I have an idea in my head of what this should look like and where we should be and what we should be doing. Our dog trainer over the course of a few sessions has said some things that really resonate with me and force me to realize that once again I am missing in this present moment. She said that one of the reasons she loves dogs is because they only have this moment right now. They don't know or care that last week they could sit and walk through the mall perfectly. Today, right now, he can't walk through the mall perfectly. When we see others around us and it looks like they are doing so well and their dog sits even when you are hopping up and down with distractions while I am still using a food lure to encourage my dog to make a good choice.... it doesn't matter is I'm comparing our worst to their best. We have not made progress and will not make progress until I am present only in this moment with the dog and we work through what needs to be done together.
 My to-do lists don't matter. My check lists of training skills and my long-term plans are meaningless in this moment. The work lists and the IEPs to be written, the dishes, the laundry, the next appointment, the next sports activity, the homework that is due, the chaos... all of it... does not have meaning unless it is what I am doing right now. It's a skill I have never learned. to practice this feels like ice skating for the first time. That dog will not learn and we can not serve our child until I am forced to practice being present in the moment with this animal when we are working.
Could it be that God has taken this journey in such a place in my life that it not only benefits Faith but also teaches me a skill I never learned and impacts our world in a big way? It seems like a God thing to do and it is in keeping with how he works in our lives. Usually when we start a project or have a door open or close, it ends up teaching us so much more that just the face value of that phase. I also believe that life is what you make it. I could choose to walk away from this idea and chalk it up to being too tired. I could just have a great family pet or I could ask someone else to train the dog. I see the potential for greatness here. I see that if I take this opportunity to learn how to just focus and be present in the moment it will impact my parenting, my teaching, my attitude, and the chaos that sometimes rules my life.

Maybe when I picture my ideal scenario, I am not picturing material things or specific activities... Maybe what I seek is the peace that comes from surrendering everything else except for this moment.  Maybe this dog was meant for more than Faith; maybe he has as much to teach me as we have to teach him. Everyone eventually hopefully has a moment in a season of life that defines them... Maybe this is my moment in this season of my life.

Sunday, September 20, 2015

my two cents on a very controversial subject

I am the parent of 3 children.
My oldest is neurochemically atypical. I with my special ed degrees and 16 years of experience feel that he shares characteristics of a person with very high functioning Asperger's and ADHD. The neuropsych team felt that he has anxiety and sensory processing disorder with ADHD (like Asperger's?). Tomato, tomatoe... Either way I have a need for a highly structured environment in my home, I have to explain things in literal black & white terms, and state all of my expectations clearly in small steps right now in order to give my son the tools he needs to build the tools for adulthood.

My daughter is affected by hypotonic cerebral palsy. Cerebral palsy is a stroke that occurs before, during, or shortly after birth resulting in a muscular abnormality present since birth that doesn't get better and doesn't  get worse. The muscle function may get better or worse but the overall make up of the muscles is not degenerative and isn't going to magically get better.

These disorders are not related, I could not have landed with 2 disabilities that are further apart. the Autism spectrum may have genetic components but as far as I know there isn't a family history of this... not granted I don't know half of my husband's genetic history and I don't know half of my Nana's genetic history, and I really don't know about much of half of my own family medical history.
I get asked more often than you might realize, "what caused this?"

"did you get sick when you were pregnant?"
-----Yes, everyone gets sick when they're pregnant, I even took antibiotics (GASP!)

"did you vaccinate your kids?"
-----Yes, I vaccinated all of the children. Their behavior did not change after vaccination and if the chemicals had any sort of interaction in their brains then I genuinely feel that my son would have eventually presented with these characteristics even if I had chosen not to vaccinate.

"were you on meds when you were pregnant?"
-----Yes, all of my small fetuses were exposed to medicine approved by authorities of western medicine.

"were there birth complications?"
-----No, there weren't any valid birth complications. If the cause were birth complications then Cole would have had CP and Faith and Davin would have been typical. Cole was born via unplanned c-section.

"did you do anything that you haven't asked forgiveness for?"
-----No, I don't think any of my sinful behavior caused any of the disabilities present in my family.
We all sin, if this were how the world works there would be no typical people to compare my kids to. Jesus paid for my sins, my kids don't have to pay for my sins.



Here's my opinion on why my children were born with some different needs:

I'm lucky!!!

Seriously, we live in a broken freaking world with chemicals in our food that we as a species really haven't seen until this last century. We live in a world where people get cancer, they die too young, we have disease, famine, and loss all around us. Our world has this whole environmental thing going on and we haven't had the tools long enough to study how our actions will impact our world or if global warming is simply a natural cycle that we (people) haven't been around long enough to see. come full circle.

I'm sure there's a little bit of everything mixed into the truth that we haven't found.

So... I don't consider these disabilities a tragedy (that's another blog). I don't think there is any one cause for how my children are made up. I know that I believe in the truths in the Bible which says say God knew my kids before they were in my womb and I know that God knew every challenge they would face. Every child has a unique contribution to this world and if I didn't have a daughter with cerebral palsy who is going to be a princess when she grows up, or a son who sees everything very literally and will be a great leader when he's an adult, or another son who loves to dress in his Sunday best every day and wants to play bagpipes and be a chef then my world would be vastly different. My kids just like your kids add something to the world that would be missing if they were any different. They've taught me lessons about myself and how I look at things, they light the room with their smiles.  Each person adds something to life that no one else can fill.

I'm really ok to accept that there isn't a "cause" for a disability. I have never felt like a disability is a disability, it's simply a different way to contribute to life. I accept that these lives are perfectly and wonderfully made out of my control and I alone did not influence their abilities or disabilities. I'm writing this because I hope that someday this way of looking at abilities will be adopted by more people and maybe we can embrace disabilities and empower people to contribute to our world in any way they can.






Thursday, July 2, 2015

a life verse for me

I am doing this online bible study, it's based on a book called "A Mended Heart". I've just finished chapter 4 and while I have gleaned quite a bit, I don't think I'm to the part where I personally have found mending.
One of the emails that they sent out had a guide for finding your life verse. I have had a few of these verses in my lifetime and while I wasn't raised in the word as much as a lot of people I can tell you the top 3 verses the Lord has given me even when I didn't have the word or before I was mature enough to spend time each day in God's word.

I'm going to have a milestone birthday tomorrow, July 3rd. I'm going to be 30. Gone are my twenties and while there were some great times (like my wedding and the birth of my children), and losing weight was a lot easier. Frankly, aside from the number I'm happy to see what this new decade will bring me and I thought I should approach it with an open heart and go ahead and try their life verse system to get off on the right start.

They had a cute PDF and I just used the comment feature in adobe to write directly on it,
Step 1:  write down what you need from God.
Step 2: what are your strengths and passions?
Step 3: what central themes do you see out of those two things (in hindsight I could have used a venn diagram) :-)
Step 4: They recommended a search in bible gateway with those key words and for you to pray about the verses that stand out to you. You could use the concordance in the back of your bible if you aren't in to the online thing.
Step 5: pick a verse and make it personal, You can verse map it, post it around you, pray about it, look at the context for sure, make it personal and something that sticks in your mind that you can go to when you just need an anchor.

Well, I searched and searched and I looked at my key words. I found many beautiful verses. Some new, and some familiar; all of them spoke something to me. None of them stood out as something that really made the bigger picture that would be an anchor. They just represent something I see in this season of my life which is great but not what I was praying for in a life verse.

I went back to some of my old favorites, verses that have stuck with me through the years and have really been what I needed when I needed to hear it.
Proverbs 3:5 - the first verse I ever memorized! I was 10 when I memorized this verse. This verse was my "go-to" as a baby Christian, When I was a small child I had a lot of confusing hurtful times and they all came to a head when I was in high school. It was truly the darkest time in my life and it took some year to heal and and come to a place where I can embrace it all. If didn't know much but I did know that God knows more than me and if I just kept walking and trusting beyond my own understanding, somehow I would be ok. I couldn't have backed it up in a theological discussion but my heart knew it's truth and that was good enough.
Hebrews 12:1 -  As a parent and as a wife and a Christian woman in this world sometimes life feels like a marathon. With the kids especially... I have compared many times having a child with special needs to running a marathon. Now I have never run 26.2 miles all at once but I have actually run 13.1 miles 4 times in 4 weeks. I can give some awesome comparisons and I'm pretty sure somewhere in this blog I have discussed it once or twice.

...and finally, and oldie but a goodie that I have concluded really is my life verse-
2 Corinthians 12:9-10 - Over the years, it was my rock when I was going through those years of healing and finding peace with some of my childhood. It was taped inside the cabinet of our first home and I looked at it every day as a new mom and cried and prayed this verse as we lost income and eventually lost everything including the house. It always somehow had a literal application and I always needed it for something along the way. I feel sometimes that God has just given me a lot of opportunities to grow in my life. he's given me a multitude of blessings and always provision but also an equal amount of times when I walked through some heat in order to me made better. 
This morning though as I read through the whole chapter around this verse I saw it in a new light. I've read the context before but I was really praying and reflecting and wanting to see things differently. Like any great life verse I see different layers of it in different seasons of  life and here is what I discovered this morning-
Paul wrote Corinthians, in chapter 12 we come in and he is talking about how he has seen Jesus and he was there when he ascended and there are things he doesn't understand but this experience and knowing Jesus is worth bragging about. He says there is nothing for him to brag about for himself except the times when he was weak because he was made strong by Jesus and that is worth bragging about. In verses 7-8 he talks about the thorn in his side and how three times he asked it to be removed but how God told him that it was through this thorn that he was being used and blessed. As I prayed and reflected on this I was reminded that this verse is not only great for encouragement when you're walking through trials but also a great reminder of what God has brought you through and how even though your past may be difficult, it's worth bragging about. 


In this new decade of my life and new season of my life - now being gainfully employed, having a career, my children being school-aged (agh!), and having hope of buying a home again in the near future and having this fresh start feeling- I feel like this verse serves as a different kind of anchor; it is a reminder to be thankful for things good and bad and to not just feel good that those trials are over but to in fact be boastful for how we have come through these things because that's how awesome our God is! 
We're going to have thorns, I still have an auto-immune disease that doesn't have a name that keeps me close to God - every day when I wake up I think that whatever God wants me to get done today, he will make it so and I can only do it with him and we get a lot done! 
Birthdays are what you make them, all things in life are what you make them; I choose to use this birthday to reflect and feel boastful about the last 30 years and this crazy awesome roller coaster ride with God at the controls.
and so...
 God reminds us when we think of walking through trials "My grace is sufficient for you, for my power is made perfect in weakness. Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delightin weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.